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Added on Tue 12th Jan 2021 2:03pm   Last edited on Tue 2nd Feb 2021 12:38am
#1

Andrew Knowlz

Trial run

My wife has been practicing for her first video. I told her it does not have to be perfect, it just needs to be her! She wants to make videos for our son, her mom and then the family as a whole. She wants to document these before her voice and words change. ALS is a horrible disease and she wants to be remembered as herself before this disease takes over.

Added on Tue 12th Jan 2021 7:13pm   Last edited on Tue 12th Jan 2021 7:13pm
#2

Jasmine keller

I understand why she wants to practice first. It's going to be etched forever. She wants it perfect! I think it's important to tell her that people will just want to see the real her. Either way, it's great that she is making videos.
Added on Tue 2nd Feb 2021 12:38am   Last edited on Tue 2nd Feb 2021 12:38am
#3

Wes Brooks

I understand where she's coming from.  None of us probably look like our old selves or function like our old selves, which is stressful because that's exactly how we want to be remembered. I think I'm going to write my messages out instead of filming them.  Maybe your wife would feel more comfortable taking that route?  Either way, it's great that she has you in her corner.