I'm glad you brought it up, Caroline! You definitely aren't alone in feeling that way. I enjoy reading the journals here and there are a few entries that express the same feelings of frustration and isolation like this one https://ohioshospice.immortum.com/journal/407/. It's tough right now. Sometimes you just need to vent and that's okay, but what about making a special recording about how much you miss them and adding it to the messages they'll get when you pass away?
I know it's not mature of me, but I feel cheated too, just for a different reason. I miss silence and having alone time. I'd like to think about where I'm at in life and come to terms with my diagnosis, but the house is full, and we're just so busy. There's homeschooling to do and work to get done. So I feel frustrated, and then I feel guilty for feeling frustrated.